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Dr. Mitakides is happy to send additional information at your request, and at no charge.  Please remember, this information is not meant to be a substitute for diagnosis and treatment.  Dr. Mitakides will be happy to provide more in-depth information at the time of examination.

Going on Vacation with EDS

April 11, 2017 | Author:

Taking a vacation is meant to be relaxing and enjoyable. But for those who have been diagnosed with Ehlers Danlos Syndrome (EDS), vacation can mean additional stress and frustration. While vacationing with EDS requires some additional planning and preparation, it can still be enjoyable and fun. Working on putting together a vacation this year? Review […]

Category: Ehlers-Danlos Syndrome | Tags: , | Comments

A Summer of EDS Education

July 9, 2016 | Author:

This summer has been a busy one for Dr. Mitakides, educating and meeting patients with Ehlers-Danlos Syndrome and their families and collaborating with other medical professionals working to diagnose and treat EDS. In May, Dr. Mitakides attended and spoke at the Ehlers-Danlos Society International Symposium. Together with many leading international medical professionals, Dr. Mitakides shared […]

Category: Ehlers-Danlos Syndrome | Comments

The Chewing Hangover

February 16, 2016 | Author:

The following is a guest blog from Sarah Fatherley, an Ehlers-Danlos and TMJ patient/activist from the United Kingdom who has appeared on panels with Dr. Mitakides, both in the U.S. and Great Britain. Please keep in mind that these are the thoughts and ideas of a patient learning to cope with daily TMJ pain, not […]

Category: Ehlers-Danlos Syndrome, TMJ Disorder | Tags: , | Comments

Beighton Score Explains Hypermobility

December 14, 2015 | Author:

The phrase “double-jointed” often describes people who can bend joints in extreme or abnormal ways or have surprising flexibility. Does this sound like you or someone you know? This kind of flexibility may actually be hypermobility and could impact your health. How do you find out if it is hypermobility or just flexibility? The Beighton […]

Category: Ehlers-Danlos Syndrome | Tags: , , | (1) Comment

Exciting Start to EDNF Conference

August 14, 2015 | Author:

The Ehlers-Danlos National Foundation Learning Conference kicked-off Thursday with Dr. Mitakides having the opportunity to meet with patients individually and answer questions they have waited a long time to ask. The Thursday evening welcome reception featured Dr. Mitakides and other professionals talking with the record-breaking crowd attending this year’s conference. This morning, the general sessions […]

Category: About Us & Events, Ehlers-Danlos Syndrome | Comments

Getting the EDNF Conference Underway in Baltimore

August 12, 2015 | Author:

Dr. Mitakides and his wife, EDNF board member Jane Mitakides, arrived in Baltimore last night at 2:30 a.m. for the 2015 Ehlers-Danlos National Foundation Learning Conference. Six hours of flight delays are not slowing them down, and today is off to an exciting start. The EDNF staff is ready to go and working hard to transform […]

Category: About Us & Events, Ehlers-Danlos Syndrome | (1) Comment

Why is EDS Rarely Diagnosed?

July 31, 2015 | Author:

Ehlers-Danlos Syndrome (EDS) is diagnosed in around one out of every 2,500 – 5,000 individuals, according to Ehlers-Danlos National Foundation. However, those estimates are significantly lower than the number of actual EDS cases. So, why the discrepancy? EDS is often undiagnosed because it presents itself in a variety of ways, often mimicking other conditions.  Who […]

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Get to Know Hypermobility and its Potential Impacts

February 23, 2015 | Author:

Do people frequently call you “double-jointed” or do you have the ability to “hyper-extend” your elbows, knees, fingers and other joints? What you may be living with is hypermobility. Simply put, hypermobility is the ability to move your joints outside of the designed range of motion, according to the Hypermobility Syndrome Association, and it isn’t […]

Category: Ehlers-Danlos Syndrome | (2) Comments

Ehlers-Danlos Syndrome: Not Rare, Just Rarely Diagnosed

January 13, 2015 | Author:

Learn the Symptoms While the Ehlers-Danlos National Foundation (EDNF) puts current Ehlers-Danlos Syndrome (EDS) diagnosis at one out of every 2,500 to 5,000, estimates of the actual number of cases is much higher. Misdiagnosis and a lack of EDS awareness among medical professionals often results in patients experiencing years of suffering without proper diagnosis and […]

Category: Ehlers-Danlos Syndrome | (1) Comment

Another look at the challenging nature of diagnosing Ehlers-Danlos

April 9, 2014 | Author:

From Dr. Mitakides:  Those familiar with Ehlers-Danlos know how challenging it is to finally arrive at a diagnosis:  the disease isn’t easily recognized because of the wide variety of symptoms it often presents.  It has been said that EDS isn’t a rare disease, it is a rare diagnosis.  This recent article profiles one EDS patient, […]

Category: Ehlers-Danlos Syndrome | Comments